Dermakids e.V.

The skin of children with the rare disease epidermolysis bullosa (EB) is as vulnerable as the wings of a butterfly – indeed they are known as “butterfly children“. Dermakids e.V., a not for profit organization, wants to ensure that these children are not left to suffer this severe illness alone but are provided with the best possible support. The association supports both patients and their families in their day-to-day lives and fosters the exchange of knowledge between experts to promote the best possible care as well as further research.